If you haven’t read between the lines you may not be aware that the name of this blog is a bizarre take on “Mom of Ali”. Years ago when I created an online account and gave myself the user name of “momofali“, my best friend sent me an e-mail asking, “Who’s Momo Fali?”
Since then, or at least since the creation of this blog, I often go by the nickname, “Momo“. As far as nicknames go, this is significantly better than when my elementary school classmates called me “Dog-Star Diane”.
But, even though I am Momo Fali, I am Mom of Ali as well. And, that Ali? Is one heck of a kid.
I talk a lot about my son’s struggles, but his older sister was even smaller than him when she was born. Ali arrived 10 weeks early, weighing just 2 pounds, 9 ounces. That was almost 11 years ago. Considering where she started, she has faced a fair amount of obstacles herself.
Her biggest challenge is being the sister of a kid with medical problems. It is not easy. At all.
There have been times when she was promised a day of fun and she’s ended up sitting in the emergency room because her brother was sick. There have been mornings when we had to drop her off at a neighbor’s house at the crack of dawn so we could get him to the outpatient center for an early surgery. And, there have been countless meals when she’s watched her brother choke and vomit at the dining room table.
Needles, meds, doctors, surgeries, therapy, x-rays…these things are a part of her life just as much as they are part of ours. Knowing what she does about life at the ripe old age of ten, just doesn’t seem right.
Don’t get me wrong. She’s still a pretty typical kid. She bosses her little brother around, she talks back a lot and I’ve actually seen her spit her dinner into her napkin and then feed it to the dogs. Though, truth be told, I’ve wanted to do that myself a few times.
Despite the things she has seen, or possibly because of them, she is amazingly well-adjusted. She is smart, responsible, kind and compassionate. I am lucky to have her.
It is time that I told her so. Just like the letter I wrote to my favorite teacher last week, I am hoping she reads this so she can know how great I think she is.
Maybe, just maybe, it will actually get her to clean her room.